Tuesday, February 17, 2015

Being out of spoons is like...


People with healthy bodies run out of fuel sometimes too of course, it's just that they can go to the gas station. Having fibromyalgia, Ehlers-Danlos Syndrome, Lupus, MS, or other chronic illnesses means there is no gas station. Sleep doesn't refill the tank because it's generally not actually restful. Rest doesn't refill the tank because you're generally still in pain, anxious over missed work, chores, activities, etc... You wake up each day hoping against hope that some fuel will have magically appeared, and that it will be enough to get you through the day... and if there's enough to 'bank' at the end of the night it's like a real live miracle. But even when you're not on empty you never reach a full tank, and there always seems to be sludge gumming up the works on top it.

Monday, October 27, 2014

It's hard to say...

The last couple weeks have been rough, I've been in a flare, and my spoons have hovered just above nil. A coworker asked me today how I'm doing... this happens a lot, I have friendly coworkers who are compassionate and care about each other. The thing of it is, fibromyalgia and other chronic illnesses aren't like strep throat, a cold, the flu, or other standard illnesses. When you have the flu, you're "all better" once the virus is gone and you've rested up for a bit. With a chronic illness, you're never all better, better happens slowly and incrementally. I'm better than I was, but I hope I'll be better tomorrow, and more better the day after that, and the day after that.


Make 'em laugh!

The cliche says laugh or cry, and I choose laugh. I will hunt for a laugh the way... a hunter... hunts. ;-)


Come rain, come shine, come snow, come sleet

There's a fog rolling in...

I know my fatigue is creeeeeeeeping up when I keep forgetting what I'm doing... the fog is thick with this one.


Please sir, may I have some more?