Tuesday, February 17, 2015

Being out of spoons is like...

People with healthy bodies run out of fuel sometimes too of course, it's just that they can go to the gas station. Having fibromyalgia, Ehlers-Danlos Syndrome, Lupus, MS, or other chronic illnesses means there is no gas station. Sleep doesn't refill the tank because it's generally not actually restful. Rest doesn't refill the tank because you're generally still in pain, anxious over missed work, chores, activities, etc... You wake up each day hoping against hope that some fuel will have magically appeared, and that it will be enough to get you through the day... and if there's enough to 'bank' at the end of the night it's like a real live miracle. But even when you're not on empty you never reach a full tank, and there always seems to be sludge gumming up the works on top it.

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